Easter comes late this year. Frenetic Brexit politics – the Westminster establishment fighting to overturn the ‘popular vote’. So sad.
Last week I gave a lecture at an ‘immuno-therapy’ meeting in Madrid. Three hundred attendees, including representatives of the Spanish patients’ APS Society. The atmosphere was fantastic. So many doctors (and patients’) wanting to learn more about our syndrome.
February is the month for the Barcelona ‘Ten Topics’ meeting – an outstanding annual event – and this year was no exception. A brilliant two day meeting, this year attracting 230 trainee doctors.
The atmosphere was wonderful – a packed auditorium and a mega volume noise level in the coffee break. As in previous years (the Barcelona Ten Topics meeting is 21 years old this year) there was an emphasis on Lupus and Hughes syndrome, and the meeting was enlivened by a series of “pavement consults” (an idea borrowed from America I think, in which difficult cases are discussed by a small team of experts).
My colleague and friend Munther Khamashta gave me a wonderful book of quotations of Dr. William Osler. Such an inspiration – a doctor who combined day to day clinical practice with teaching and clinical research. His papers include one of the early descriptions of systemic lupus in 1895.
One of his quotations concerns stroke – the subject of today’s ‘patient of the month’. “The chief difficulty in deciding upon a method of treatment (of stroke) is to determine whether the apoplexy is due to haemorrhage or to thrombosis.”
The year 2018 ended with a whimper – mild and grey. No snow in London thank goodness. For me the medical highlight of the month (and the year) was the awarding of The Sheikh Hamdan Bin Rashid al Maktoum award for medical services – an international medical prize awarded by the Dubai Royal family every two years – for me an immense honour. The prize was presented by Sheikh Hamdan in an impressive ceremony in Dubai.
It was awarded for the description of Hughes syndrome – “one of the two most important disorders discovered in the late 20thcentury” according to his Highness.
You can imagine how touched I was to be awarded this truly international honour.
It’s wonderful when one gets to a meeting or a conference which is both outstanding, and at the same time, somewhat outside ones own circle of expertise or experience.
So, a while ago, I found myself in a conference on metal allergies. Organised by my good friend Dr Shideh Pouria, one of the UK’s leading experts on allergic diseases. Pressed by Shideh to attend, (and being free on that particular Friday) I was hooked. So many lessons. How many of my more ‘difficult to diagnose’ patients attending my Lupus, Sjogren’s and Hughes Syndrome clinics have similar clinical pictures to those discussed in this meeting – the headaches, the aches and pains (and ‘fibromyalgia’), the fatigue.
For us, the warm late summer/autumn weather continued through into November. The colours rival those of Maine.
Our new education charity website (www.ghic.world), is now getting into gear. We have been joined by Suzanna Magill, who, as Manager, will run our international network. We welcome all articles, letters, photos and questions, both from patients and medics.
One event, which we organised last month, was a fundraising book launch of a book by Kay Thackray, who, in my view, has written the best patients’ book on Hughes Syndrome – ‘Sticky Blood Explained’ – a practical, personal and well written view of the syndrome.
Summer lingers on – even in the season of mellow fruitfulness, the temperature is still high and here, at least in Kent, the gardens are parched.
On Saturday, I gave the inaugural lecture in the Middle East Medical Congress, in the beautiful city of Beirut. This annual conference, bringing together doctors from all over the region, including Iraq and Syria, is one of my favourite medical events. The medical standard is high – indeed some of the best work in Hughes Syndrome/APS is coming out of the American Hospital in Beirut.
At last a summer to remember. August – at least here in Kent, was hot and sunny. The pleasure boats on the Thames were full. London a town of tourists.
Each month, arthritis doctors receive a magazine called “The Rheumatologist”. This popular American magazine goes out to rheumatologists round the world and reports advances in our field
The Patients’ Meeting will be held on Friday, 21st September 2018 (from 1.30 p.m. to 5.00 p.m.), at the Hilton London Tower Bridge. The programme and tickets are available on: https://www.eventbrite.co.uk/e/patients-meetinglupus-hughes-syndrome-a-modern-epidemic-tickets-46536304339. We plan to bring along booklets etc., and certainly look forward to it.
On the home front, our new educational charity is now finally getting into full shape.
As part of our ‘introductory’ events, we are holding a ‘Patients’ Meeting on Friday, 21st September 2018 in the London Hilton Tower Bridge (opposite London Bridge Station), and topics will include Lupus and Hughes Syndrome. For more details go to: http://bit.ly/2u02LYb
The meeting is being run in collaboration with Lupus UK and is being sponsored by London Bridge Hospital, and the afternoon will consist of short talks by both patients and doctors, followed by a ‘Question and Answer’ session.