Education, Awareness, Support

Who We Are

Professor Graham Hughes

Professor Hughes

In 1983, Graham Hughes reported on a new syndrome. He described in detail the clinical manifestations of the syndrome, including the tendency to thrombosis and to recurrent pregnancy loss.

His description included many of the features now recognised as important, including livedo, stroke, chorea, memory loss, seizures, liver and renal involvement.

He also recognised that the condition could affect arteries as well as veins, and was distinct from lupus.

Dr Hughes and his colleagues set up assays for anticardiolipin antibodies and organised the first of what was to become a regular international conference. The 13th International Conference on Antiphospholipid Antibodies was held in Cyprus in 2016, with 1000 participants.

Read More ( Prof. Hughes CV )

Patrons

These experts have all shown outstanding contributions in their field of medicine and media, which can also be associated with Hughes Syndrome.

Lord Michael Ancram, Marquess of Lothian

Professor Peter J Goadsby MD PhD DSc FRACP FRCP

Professor Christopher Mathias MBBS DPhil DSc FRCP FMedSci

Dr Chris Steele MBE

Mrs Cheryl Marcus

Mrs Naina Jatania

Trustees

We have ten Trustees, a mixture of Doctors, Researchers and two founding Patients. The Trustees oversee the running of the charity to ensure that our objects are met and that we are governed under the regulations of UK Charity law.

Medical Advisory Committee

We have an advisory panel of 78 International Hughes Syndrome experts made up of physicians and researchers working in the field from all over the world.

See full list of Medical Advisers

Abu Dhabi

  • Dr. Mustafa Al-Maini

Argentina

  • Dr. Paula Alba
  • Dr. Bernardo Pons-Estel

Australia

  • Dr. Eric Morand

Brazil

  • Dr. Roger Levy
  • Dr. Eloiisa Bonfa

Canada

  • Dr. Marvin J. Fritzler
  • Dr. Murray B. Urowitz

Columbia

  • Dr. Antonio Iglesias

Dubai

  • Dr. Jamal Al-Saleh
  • Prof Munther Khamashta

Egypt

  • Dr. Khaled El-Hadidi

France

  • Dr. Guillaume Canaud
  • Dr. Pierre Youinou

Germany

  • Dr. Rebecca Fischer-Betz
  • Dr. Annegret Kuhn
  • Dr. Mathias Schneider

Greece

  • Dr. Dimitrios Boumpas
  • Dr. Maria Tektonidou

Hong Kong

  • Dr. Daniel Chan
  • Dr. Chak S Lau

India

  • Dr. Anand Malaviya

Iran

  • Dr. Saeedeh Shenavandeh

Israel

  • Prof. Yehuda Shoenfeld
  • Dr. Elias Toubi

Italy

  • Prof. Stefano Bombardieri
  • Prof. Rolando Cimaz
  • Prof. Andrea Doria
  • Dr. Gabriella Moroni
  • Dr. Marta Mosca
  • Dr. Vittorio Pengo
  • Dr. Savino Sciascia
  • Prof. Angela Tincani

Japan

  • Dr. Olga Amengual
  • Dr. Tatsuya Atsumi
  • Dr. Takao Koike

Jordan

  • Dr. Ala Al-Heresh

Lebanon

  • Dr. Imad Uthman

Madeira

  • Dr. Jorge Martins

Mexico

  • Dr. Mary Carmen Amigo
  • Dr. Juanita Romero-Diaz

Morocco

  • Dr. Zoubida Tazi Mezalek

New Zealand

  • Dr. May Ching-Soh

Oman

  • Dr. Humaid Al-Wahshi

Philippines

  • Dr. Sandra Navarra

Portugal

  • Dr. Carlos Diaz
  • Prof. D. Carlos Vasconcelos

Qatar

  • Dr. Samar Al-Emadi

Saudi Arabia

  • Dr. Ahmed Al-Shaikh

Scotland

  • Dr. Assad Zoma

Serbia

  • Dr. Ljudmila Stojanovich

Singapore

  • Dr. Aisha Lateef
  • Dr. Sheila Vassoo

South Korea

  • Dr. Sang Cheol Bae

Spain

  • Prof Ricard Cervera
  • Prof Guillermo Ruiz-Irastorza
  • Dr. Miquel Vilardell

Turkey

  • Prof Murat Inanc

UK

  • Prof Ian N. Bruce
  • Dr. Maria Cuadrado
  • Prof Christopher Edwards
  • Prof Charles Mackworth-Young
  • Dr. Arvind Kaul
  • Prof. Ali Jawad
  • Dr. Paul Holmes
  • Dr. Giovanni Sanna
  • Dr. Colin Tench

USA

  • Dr. D. Ware Branch
  • Dr. Charles L Christian
  • Dr. Doruk Erkan
  • Dr. Bevra H. Hahn
  • Prof Michael Lockshin
  • Dr. Michael Mahler
  • Dr. Michelle Petri
  • Dr. Jill Schofield
  • Dr. Vibeke Strand
  • Dr. Daniel J. Wallace
  • Dr. Gerald Weissman