Our new website (ghic.world) has now come on stream. Free to subscribers, the website aims to link doctors and patients dealing with lupus and Hughes Syndrome in a global network.
Earlier this month, I took part in the 20th ‘Ten Topics in Rheumatology’ meeting in Barcelona. Over these past 2 decades, the ‘Ten Topics London’ and ‘Ten Topics Barcelona’ meetings have nourished a very strong link between our unit at St Thomas’ Hospital (and now at London Bridge Hospital) and a number of medical and research centres in Spain.
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far.
In October, I was a guest speaker in Porto, Portugal. It was at an international immunology meeting, and one of the 2 days was devoted to Hughes syndrome/Antiphospholipid syndrome (APS).
One of the recurring themes of history-taking in patients with Hughes Syndrome – or even in those with the suspected diagnosis – is the difficulties so many patients face - tortuous journeys towards a final diagnosis.
London is special in August – no school runs, less commuters – and thousands of tourists adding to the buzz of the capital. Really special.
Wimbledon has started in a blaze of sunshine. What a wonderful summer we are having (at least here in the South-East) - surely it can’t go on. June was, for me, “Midlands Month”. A lecture on Hughes syndrome, lupus and Sjogren’s to the annual meeting of The Royal College of GPs – this year in Birmingham. A very positive meeting – 300 GPs, with an extremely lively question and answer session.
Waiting for a taxi to take me back to Basel airport for the short flight home to London. As good a time as any to start writing the May ‘blog’.
Big news! A group of patients and doctors here have set up a new charity, whose main purpose is education.