I took the opportunity to run an ‘anonymous’ survey of the patients with 4 questions: – How long did it take from the beginning of symptoms until diagnosis (rough estimate)? How many doctors/specialists did you see before diagnosis and treatment? What other diagnoses were you given? If you had had any pregnancies, how many pregnancy losses did you suffer?
Of course, such a straw poll has many defects, but the responses came up with some interesting findings.