Education, Awareness, Support

Archive of: November, 2018

November 2018

For us, the warm late summer/autumn weather continued through into November.  The colours rival those of Maine. 

Our new education charity website (www.ghic.world), is now getting into gear.  We have been joined by Suzanna Magill, who, as Manager, will run our international network.  We welcome all articles, letters, photos and questions, both from patients and medics. 

One event, which we organised last month, was a fundraising book launch of a book by Kay Thackray, who, in my view, has written the best patients’ book on Hughes Syndrome – ‘Sticky Blood Explained’ – a practical, personal and well written view of the syndrome. 

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