It’s wonderful when one gets to a meeting or a conference which is both outstanding, and at the same time, somewhat outside ones own circle of expertise or experience.
So, a while ago, I found myself in a conference on metal allergies. Organised by my good friend Dr Shideh Pouria, one of the UK’s leading experts on allergic diseases. Pressed by Shideh to attend, (and being free on that particular Friday) I was hooked. So many lessons. How many of my more ‘difficult to diagnose’ patients attending my Lupus, Sjogren’s and Hughes Syndrome clinics have similar clinical pictures to those discussed in this meeting – the headaches, the aches and pains (and ‘fibromyalgia’), the fatigue.
For us, the warm late summer/autumn weather continued through into November. The colours rival those of Maine.
Our new education charity website (www.ghic.world), is now getting into gear. We have been joined by Suzanna Magill, who, as Manager, will run our international network. We welcome all articles, letters, photos and questions, both from patients and medics.
One event, which we organised last month, was a fundraising book launch of a book by Kay Thackray, who, in my view, has written the best patients’ book on Hughes Syndrome – ‘Sticky Blood Explained’ – a practical, personal and well written view of the syndrome.
Hughes Syndrome Related
Thrombosis & Stroke
Other Related Charities
Other Useful Websites and Groups